When you last left us we were getting we were waiting for our bone scan.....
**We got our bone scan. Katie did really well staying still and did not freak out at all. She tolerated the machine getting close to her face and everything.
**While in the bone scan a nurse came in to say that they wanted to change our MIBG date (a test that was scheduled for this Thursday)....While in the scan I also received a call that Katie needs a blood transfusion.
**We were about 30 minutes late to the audiogram. The audiogram started 45 minutes later than scheduled....Katie is losing some high frequency hearing. Her right ear is better than her left. The chemotherapy can continue to affect her hearing even after it is finished...
**We then went to get the echocardiogram. They had trouble taking pictures of her heart because of the placement of the central line. Where they were to put the probe was where her central line is tunneled under the skin and muscle. However, even with the pain, Katie fell asleep.
**We are now at Dr. Russell's office. They are going to do a blood transfusion BUT we have to wait for a room to get transfused (they can not do it here BECAUSE it is too late...the blood runs over 2-4 hours and this office closes in an hour and half....)
**They will not transfuse platelets today....but will do a CBC on Thursday when they come to see if she is low enough to need platelets (they infuse at 20 or below and she is at 30)...
**Her Wednesday appointment has been cancelled....she has a CT scan on Thursday and possible platelet transfusion. On Friday we need to be at the BMT for blood work at SEVEN in the morning...
OH my Gosh what a rat race day you had. Hope it turned out ok and that the rest of the week will go a little smoother. Did you get to eat? Well My Prayers are with all of you
ReplyDeletePrayers and email Hugs
MOna White
Glad these people actually know what they are doing when it comes to treatment - otherwise I'd be a little nervous.
ReplyDeleteI am so sorry today was so bad. I can't even imagine how bad the echocardiogram must have hurt Katie!! I have had two with no central line and they HURT. They have to push so hard with the probe that it made me cry the first one I had and the second one a few months ago the second one was not much better. Poor little Katie. She fell asleep even with the pain, bless her sweet heart. Tell her NANA is sooo proud of her today and always. Tell her Nana says She was so brave. Love you both. I will keep on praying till the answer comes, and I truly believe it has already or is on the way, we just don't know it yet. Love, MOM
ReplyDeleteI'm so sorry...reading this makes my heart ache for you all so much. Still praying confidently.
ReplyDeleteour prayers are always with you all. I know how TCH can be just hang in there. Just remember they really do know what they are doing.
ReplyDeleteLauree and Little B Hamm