Tuesday, February 8, 2011
-----------------------------------------------------------
Bring The Rain
Artist: Mercy Me
Album: Coming Up To Breathe
I can count a million times
People asking me how I
Can praise You with all that I've gone through
The question just amazes me
Can circumstances possibly
Change who I forever am in You
Maybe since my life was changed
Long before these rainy days
It's never really ever crossed my mind
To turn my back on you, oh Lord
My only shelter from the storm
But instead I draw closer through these times
So I pray
Bring me joy, bring me peace
Bring the chance to be free
Bring me anything that brings You glory
And I know there'll be days
When this life brings me pain
But if that's what it takes to praise You
Jesus, bring the rain
I am Yours regardless of
The dark clouds that may loom above
Because You are much greater than my pain
You who made a way for me
By suffering Your destiny
So tell me what's a little rain
So I pray
Friday, February 4, 2011
Snow DAY
Hoping tomorrow will be okay. Feb 5 marks 6 months since Katie went to heaven. It has been a hard 6 months and I miss her each and every day. They say that time heals all wounds but I think that they are mistaken. Time makes it somewhat easier because you get use to living without her but it isn't something that you want to get use to. Little things remind me of her...things we use to do or things that she loved...And though I hope that some day these reminders will make me smile, right now they make me sad because I miss her. Laura Beth has been talking a lot about Katie lately. She says things like "I hug Katie" or "Katie gave me Jessy" (Jessy is Katie's favorite doll that went everywhere with her). It makes me sad and happy. I am sad for what Laura Beth has lost and I am happy because Katie would want Laura Beth to remember her. Thank you for continuing to follow us on this journey...and for praying for us because we still need those prayers very much.
Here are some pictures from the day!
Country Girl!

Thursday, January 27, 2011
Remembering
Then last night, I was rocking Laura Beth to sleep. She had been having a rough night and had had a few melt downs. Out of the blue she said, "I like Katie" I told her that I knew she did and that Katie loved her. Then she said, "I hug Katie". Of course I began crying...it confused her and she asked "You okay?" I reassured her...we rocked some more and then she went to bed.
I am sad at what my sweet monkey has lost...she lost a sister, a friend, a confidant, someone to fight with, and someone to learn from. She lost a great big sister who loved her and wanted to protect her. We all long for the day that once again our family will all be together in Heaven with our Lord and Savior.
Monday, January 17, 2011
Happiness, Sadness, and a need for Prayer
Colby continues to be cancer free! Colby is a little boy who lives in College Station. He had neuroblastoma but has been in remission for a while. His latest scans show that he continues to be free of this terrible disease. Praise GOD!!!
Sadness
Alexis Agin passed away this past Friday. She is finally free from being stuck in a body where she can not move or talk BUT her family is aching from the loss of their beautiful little girl. They are Jewish and many times her dad has expressed on their blog that he no longer believes in a higher power. I ask that you pray for him to find peace and find Jesus in all of this sadness. Their blog is http://www.caringbridge.org/visit/teamalexis
A need for Prayer
Please pray for a friend of mine, Holly Bush and her family. Holly is pregnant with her second son. She and her husband recently found out that their son has anencephaly. This means that his brain has stopped developing and his skull is not forming as it should. This also means that their son will not live for very long once he is outside of the womb. Please pray for Holly and her family as they go through this very difficult valley.
You can follow them at her blog http://thelittlejourneyofbabythomas.blogspot.com/
Another update...Kodi Tutt is in San Francisco receiving her MIBG treatment. She is 6 (if I remember right!) and has neuroblastoma. From what I have read, she is doing well. Please pray that she can continue to handle the emotional impact of being separated from her family during treatment and that the treatment will completely abolish the cancer inside her! http://www.caringbridge.org/visit/koditutt
As for us...well each day brings new reminders of Katie. It is a variety of small things and quite often they catch us off guard. For example, tonight I took Laura Beth to the potty and was telling her to push to make sure she got all the te-te out...and I was reminded of when I had to do the same thing with Katie...it made me so sad... But life goes on....right? =)
Sunday, January 2, 2011
Happy New Year
Monday, December 27, 2010
Katie's Party
Thursday, December 9, 2010
Happy 5th Birthday Katie!!!
Happy Birthday Day my 5 year old! I pray that you are having a wonderful "Little Mermaid" birthday party in Heaven. I love you my precious girl!
________________________________________________
The following is a devotional from the message of Adrian Rogers:
Free to Choose
“What man is he that fears the Lord? Him shall He teach in the way that He shall choose.” Psalm 25:12
"You are free to choose. You are not free, however, not to choose. Then, after you make a choice, your choice chooses for you. There are consequences for your choices – always. If you choose to step off the roof of a ten-story building, you are not, then, free to choose the consequences of your choice. Your choice has chosen for you. What if you make a bad choice? What is God’s reaction? First, He is in control. Your choices will not take Him by surprise. Thanks be to God, He can prevail over our bad choices to restore us into fellowship with Himself!"
Please, in honor of Katie, be BOLD in your faith and share it with others.
Tuesday, December 7, 2010
Urgent Prayer Request
I would also like to ask for prayers for Kodi Tutt. Her parents both went to the same college as I did. She is a beautiful 6 year old girl with neuroblastoma. She has been undergoing treatment for ~9 months and has not yet made it to the bone marrow transplant phase of treatment. Their road is so much like what ours was...her parents are having to make so many decisions and they need God's guidance. (her blog is http://www.caringbridge.org/visit/koditutt )
Thank you so much for your prayers...they are truly very important. God hears each and every one of them.
Sunday, December 5, 2010
4 months...
***We miss you cuddle-bug! And think about you constantly...
Wednesday, November 24, 2010
Layla Grace Marsh
Friday, November 19, 2010
Thanksgiving...
As you prepare to share Thanksgiving with your family, please remember to take some time out of the hustle and bustle of fixing a meal and all, to have FUN with your family. Make some great memories...remember that in ten years no one will care about how good the food was or how clean the house was BUT they will remember the fun and your children will remember how momma let them help cook!
Also please join me in prayer for Alexis' family. Their blog is http://www.caringbridge.org/visit/teamalexis. They are going through the painful journey of letting their precious daughter go...many times her father has expressed through the blog that he is unsure of God and you can tell his faith is not as solid as he would like. Please pray that he sees "the breadcrumbs" of grace that God is leaving him.
HAPPY THANKSGIVING!
Wednesday, November 17, 2010
Heaven...
-----------------------------------------------------------------------------------
"Heaven Is The Face"
Words & Music by Steven Curtis Chapman
Heaven is the face of a little girl
With dark brown eyes
That disappear when she smiles
Heaven is the place
Where she calls my name
Says, "Daddy, please come play with me for a while"
God, I know, it's all of this and so much more
But God, You know, that this is what I'm aching for
God, You know, I just can't SEE beyond the door
So right now
Heaven is the sound of her breathing deep
Lying on my chest, falling fast asleep while I sing
And Heaven is the weight of her in my arms
Being there to keep her safe from harm while she dreams
And God, I know, it's all of this and so much more
But God, You know, that this is what I'm aching for
God, You know, I just can't SEE beyond the door
Heaven is a sweet, maple syrup kiss
And a thousand other little things I miss with her gone
Heaven is the place where she takes my hand
And leads me to You
And we both run into Your arms
Oh God, I know, it's so much more than I can dream
It's far beyond anything I can conceive
So God, You know, I'm trusting You until I SEE
Heaven is the face of my little girl
Sunday, November 14, 2010
Prayer
Thank you for continuing to keep up with us. I am sorry that I do not post on here as often as I use to...but life is much busier here in the real world than it is in the hospital world. Just think, this time last year we were planning to go into the Bone Marrow Transplant phase of our life....wow what changes can happen in a year.
Monday, November 1, 2010
Dance with a touch of sadness
So onto tomorrow....THANK GOD IT IS NOT MONDAY! =)
Sunday, October 31, 2010
Halloween 2010
Today William, Laura Beth and I along with both of our families went out to the Fall Festival at Elwood Baptist Church (where William's dad is the pastor). There was a bounce, face painting, pinata, and all sorts of other games. Laura Beth dressed as a butterfly fairy! She loved wearing her 'tutu' and wings. Whenever she put her wings on she would ask to FLY! It was so much fun. She wasn't sure about the 'trunk-or-treat' but did bring in a nice haul anyway. Her favorite part was getting to jump and go down the huge slide in the bounce. She even stood still to get her face painted (a butterfly of course!) All in all it was a great day.
**Of course we missed our Katie who would have dressed as Cinderella today. She picked out what she was going to be about 6 months ago! Forever a planner. Today, I missed my blue eyed angel just like I do every day. She may be gone from this earth but she is never far from our thoughts! Hopefully someday we will all smile and laugh when we remember her instead of cry in our sadness and grief over losing her...Thank you for your continued prayers for us.**
Saturday, October 9, 2010
Here we go again....
Please pray for comfort for the Hahn family. Keith's mother passed away on Thursday (October 7th). She had had a difficult battle with an illness that had put her in a nursing home. Please keep Amy (William's sister), Keith, his dad (Melvin), his brother (Doug) and the kids in your prayers. I, for one, am tired of having a funeral once a month! Thank you so much for your prayers. They are very much appreciated.
Sunday, October 3, 2010
2 months...
Today makes two months since you went to be with Jesus. I know you are having a wonderful time playing with the other children there, flying with butterflies, and talking everyone's ear off. I take comfort that you are no longer in pain, have no sadness and are running around like every 4 year old should be able to. Every moment of every day I think of you and I miss you. It seems like I think more about you now than I did when you were with me on earth. Everywhere I turn there is something to remind me of you. A show you would have watched, a song you knew the words to, a picture of you, a book we have read together, and many more things. I try my best, but just about every time I am drug back to my grief. It is overwhelming. Anytime I am driving or laying in bed my mind begins to wonder I think about you. I cry for what I have lost, what we have all lost in losing you. I try not to but it is hard...I can almost hear you tell me to calm down...I miss your sweet voice, your smile, your brilliant blue eyes, your kind words, your laugh and most of all your hugs & kisses. Your sister sounds so much like you that sometimes I hear her and think it is you for a brief second...then I remember...You would be so proud of Laura Beth. She started going to dance class last month. She loves it as much as you did. She is also talking a lot more...she has taken up your job of telling the dogs to be quiet! I try to give her a hug every day for you just like you asked. She misses you so much. She loves to sit and watch all 'your' shows and read all of 'your' books. We all miss you. I pray that someday I can smile as I recall all that you did or said...instead of crying for what I will never see you do. I love you cuddle bug.
Love,
Momma
Friday, September 24, 2010
Remembering...
The following article was writing by Jennifer Medina, who is the fundraising director for the Layla Grace Children's Cancer Research Foundation. Please visit www.laylagrace.org for other stories of children with cancer.
________________________________________________
"What is faith? It is the confident assurance that what we hope for is going to happen. It is the evidence of things we cannot see.” Hebrews 11:1
I’ve heard it said that faith is easy to have when everything is going your way. When it becomes harder, is when things begin to change. When the unknown becomes reality and the future you had planned for yourself is suddenly a memory. This type of change often rocks us to our core, rendering us useless, hopeless, dazed. When reading the Connor family’s blog, the one constant is their unequivocal faith. When everything else in their lives was wavering and faulty, they were steadfast in believing that someone other than themselves had a plan for their sweet little girl, Katelyn.
Katelyn’s journey with childhood cancer started much like other sufferers of “The Great Masquerader”. At three years old she began to complain of leg and stomach pains. Her pediatricians couldn't find anything wrong, and after being told so many times that there was nothing wrong with their child, the Connors eventually changed doctors. The family, who lives near College Station, eventually ended up in Houston at Texas Children’s Hospital. On May 14, 2009, after two weeks of poking and prodding, talk of enlarged organs and mentions of mono or leukemia, Katelyn was diagnosed with Stage 4 High-Risk Neuroblastoma.
Katie’s oncologist, Dr. Heidi Russell, told Christa and William that, had the Neuroblastoma gone untreated, their little girl would have only lasted a few weeks longer. Christa’s persistence that something was wrong with her child saved her life.
Katelyn’s life change dramatically in a matter of days. She was no longer a carefree three year-old, spending the days playing with her two best friends, Zoey and Kate. She was now separated from them as well as her younger sister, Laura Beth. Katie and her sister were very close, and the time apart was very hard for them to adjust to.
Katelyn was lovingly referred to by her dad as his “Turkey”, a nickname that stuck, and even provided the name for her blog (www.ourturkey.blogspot.com). She was her Momma’s “Cuddle bug”. And she was her sister’s idol. But now, she wasn’t able to be any of these things full-time anymore, because she now had another job. She had to be her own hero. She had to battle cancer.
Nevertheless, a quiet calm held fast in Katie. The hospital, of course brought out a temper in her. She would wag her finger and the nurses and tell them to get out of her room. She had meltdowns and crying fits. What three year-old doesn’t? Through it all though, Katie did what she had to do. She was compliant with the doctors and nurses, she became the youngest patient at TCH to undergo radiation without sedation, and despite it all – she still believed that she was going to be ok. She even told her mother one day, over oatmeal at Starbucks, that she had accepted Jesus into her heart. This was a child who knew where she was going, no matter what the cancer did to her. She had faith.
It was Katie’s faith in heaven that led her to have a conversation about heaven with her Mom one day. She was worried, you see, that when she was in heaven, her mother was going to forget her. Most parents have to worry about their children forgetting them. Going off to school, making new friends, getting their first boyfriend or girlfriend, and busying themselves so much that their parents aren’t what they used to be to them anymore. Katie, however, couldn’t bare the thought that her mother, father, and baby sister would forget her smile and quick wit, something Christa says they could never do.
Katie endured a 15-month battle with Neuroblastoma. Undergoing 11 surgeries, 11 rounds of chemotherapy, 2 rounds (22 days) of radiation, a bone marrow transplant, and much, much more. The physical pain that the cancer and her treatment plan caused Katelyn was nothing compared to the emotional toll it took on her and the rest of her family. As parents, Christa and William had to balance home, work and two children. Laura Beth had to suffer not only the absence of her sister, but of at least one parent at a time.
One day in May of 2010, Katie made a confession to her mother. “Mom”, she said, “I have given up. This cancer is too big for us to kill.”
At four years old, Katelyn felt defeated by this ominous disease. Her body was weak and weary from all of her treatments, and she was out of fight.
Three months later, on August 5, 2010, Katelyn lost her battle. Christa and William lost their daughter. Laura Beth lost her everything, her sister. And heaven gained another angel.
The Connor family is still struggling to go back to “normal”. They are adjusting to life without Katie, although her memory will never fade from their hearts. Much like Layla, Katie’s life story brought many people closer to their faith. Christa shared in a recent blog that hopes everyone who was touched by Katie’s life will “continue to embrace God's word and in turn produce a good harvest and plant seeds in other's lives.”
We too hope that you will embrace the challenge but before us, by children like Layla and Katie, who have done their part in fighting childhood cancer. They have passed to torch to us, and the futures of children just like them depend on your advocacy. We have faith that a cure WILL be found. But we need your help to spread the word of the dire prognosis these children face.
**If you go to Layla's blog you can see the pictures that were included in the article...for some reason I couldn't put them on her. **
Have a great day...and anytime you see a monarch butterfly tell Katie hi!
Monday, September 13, 2010
I got back into town last Thursday. I had a nice visit with my family and was glad to be there for my grandmother. A HUGE thank you to Aunt Marian who took me to the airport and picked me up (especially when my flight was 2 hours late!)
Today was a special day...it was Laura Beth's first day at dance class with Mrs. Lori! She enjoyed it immensely and was hilarious to watch! I don't know how Mrs. Lori does it but she had 20 two and three year old girls fairly organized! I was impressed. =) It was a hard time for me but also a joyous one. It was good to see her having so much fun just like her sister use to! Here are some pictures from the day.
Thursday, September 2, 2010
Death...
On a lighter note...yesterday we had Dash neutered and then we brought him in the house. We got Dash a week before Katie was diagnosed. He was suppose to be an inside dog and help Katie feel better. When she was diagnosed he got shipped outside. Katie always said, "When I am not sick any more Dash will get to come back inside." Well she isn't sick anymore...so pray for us as we are helping our little dachshund get use to being inside. =)